SA¹ú¼Ê´«Ã½

Saturday 06 December 2025
Salisbury Foundation Trust

FOI_8801

Internal Reference Number: FOI_8801

Date Request Received: 28/07/2025 00:00:00

Date Request Replied To: 04/08/2025 00:00:00

This response was sent via: By Email

Request Summary: HAE and IG Drugs

Request Category: Companies



 
Question Number 1:
I am writing to request the following information under the FOIA. If you require any clarification regarding this request, please do not hesitate to contact me.


HAE:

In the past 3 months [latest 3 months available] how many patients have received the following treatments [for any disease]:

Berinert (Human C1-esterase inhibitor)

Cinryze (Human C1-esterase inhibitor)

Orladeyo (Berotralstat)

Takhzyro (Lanadelumab)

Ruconest (Recombinant human C1-esterase inhibitor)

Firazyr (Icatibant injection)

Icatibant - any brand except Firazyr
 
Answer To Question 1:
Please find attached word document containing Q1 response

To accompany this answer to question 1 please also see the documents listed below:

 FOI 8801 - question 1.pdf
 
Question Number 2:
IG

In the past 3 months how many patients have received the following treatment for any disease:

Octagam

Gamunex

Intratect

Kiovig

Gamten

Panzyga

Xembify

Cuvitru

Cutaquig

Hyqvia
 
Answer To Question 2:
Octagam <5 patients, Gamunex 11 patients, Intractect <5 patients, Kiovig/Xembify/Cuvitru/Cutaquig/Hyqvia zero patients, Gamten 16 patients, Panzyga <5 patients
 
Question Number 3:
In the past 3 months, how many patients have received any immunoglobulin treatment for the following diseases:

Primary immunodeficiency (PID)

Secondary immunodeficiency (SID)

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
 
Answer To Question 3:
PID 5 patients, SID 17 patients, CIDP 7 patients
Please see Attachments:
 
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