Internal Reference Number: FOI_8650
Date Request Received: 15/05/2025 00:00:00
Date Request Replied To: 08/07/2025 00:00:00
This response was sent via: By Email
Request Summary: Spinal Muscular Atrophy
Request Category: Researcher
Question Number 1: We have a freedom of information request related to the diagnosis and treatment of Spinal Muscular Atrophy. Your answers to the following questions would be greatly appreciated. How many patients have a current diagnosis for Spinal Muscular Atrophy (ICD-10 Code G12.0, G12.1, G12.8 and G12.9) at your trust? | |
Answer To Question 1: Total patients with a diagnosis of any of the given codes = 21 | |
Question Number 2: Question 2. How many patients have been treated in the last 4 months (January to April 2025) with the following products: • Evrysdi (Risdiplam) • Spinraza (Nusinersen) • Zolgensma (Onasemnogene) | |
Answer To Question 2: 0 patients have received any of the drugs listed in Q2 Jan - April 2025. | |
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Our staff at SA¹ú¼Ê´«Ã½ Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.