Internal Reference Number: FOI_8568
Date Request Received: 09/04/2025 00:00:00
Date Request Replied To: 09/05/2025 00:00:00
This response was sent via: By Email
Request Summary: Haemophilia B and Von Willebrand Disease
Request Category: Researcher
| Question Number 1: How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs: • Alprolix • BeneFIX • Haemate P • Idelvion • Refixia • Rixubis • Veyvondi • Voncento • Wilate • Willfact | |
| Answer To Question 1: How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs: • Alprolix - < 5 • BeneFIX - < 5 • Haemate P - < 5 • Idelvion - < 5 • Refixia - < 5 • Rixubis - < 5 • Veyvondi - < 5 • Voncento - 0 • Wilate - < 5 • Willfact - < 5 | |
| Question Number 2: How many patients have been treated in the past 3 months with: • Marstacimab for Haemophilia B ONLY • Gene therapy for Haemophilia B ONLY • Desmopressin for Von Willebrand Disease ONLY • Tranexamic Acid for Von Willebrand Disease ONLY | |
| Answer To Question 2: How many patients have been treated in the past 3 months with: • Marstacimab for Haemophilia B ONLY - < 5 • Gene therapy for Haemophilia B ONLY - < 5 • Desmopressin for Von Willebrand Disease ONLY - < 5 • Tranexamic Acid for Von Willebrand Disease ONLY - < 5 | |
| Question Number 3: Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment: • Prophylactically • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 3: Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment: • Prophylactically - < 5 • During surgery - 0 • On demand to treat bleeding episodes - 0 | |
| Question Number 4: Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment: • Prophylactically • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 4: No patients treated with Voncento. | |
| Question Number 5: How many patients are registered with your trust for the following diseases: • Haemophilia B • Von Willebrand Disease • Von Willebrand Disease - paediatric patients (age 17 or under) | |
| Answer To Question 5: Please see below: Haemophilia B = 29 patients Von Willebrand Disease = 537 (all ages) Von Willebrand Disease - paediatric patients (age 17 or under) = 15 | |
| To return to the list of all the FOI requests please click here |
Our staff at SA¹ú¼Ê´«Ã½ Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
